The Foundation for Nager and Miller Syndromes

Welcome to FNMS Online

Foundation for Nager and Miller Syndromes

The Foundation for Nager and Miller Syndromes (FNMS) is an international support group dedicated to helping those affected by these two similar and extremely rare, genetic conditions which involve moderate to severe facial and limb anomalies, but do not usually affect intellect.

These syndromes often affect one's ability to see, hear, breath, eat, walk, talk and write. FNMS serves as an information clearing house to help educate families and professionals about Nager and Miller syndromes. FNMS' extensive library of resources and medical reports on these rare conditions are available by request. Challenged families join the FNMS network for support, referrals and sharing of helpful experiences.

Nager And Miller Syndromes
Nager And Miller Syndromes
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Nager And Miller Syndromes Nager And Miller Syndromes

Genetic Research

Miller Syndrome Gene Discovered!

Nager & Miller Syndrome Research Projects

The Foundation for Nager & Miller Syndromes is proud to announce that reasearchers at the University of Washington and Seattle Children's Hospital Research Center have discovered the gene that causes Miller Syndrome! This study at Seattle Children's Hospital involves the use of a newer whole gene sequencing...

Read more »

2015 FNMS Family Conference

FNMS is pleased to announce that the 2015 FNMS Family Conference will be held at the Country Inn & Suites - French Quarter in New Orleans, Louisiana, USA.  Conference dates are June 25-28, 2015. Speakers and activities are still being finalized, more details will be posted as they become available.  Please Email DeDe Van Quill at once you have made your room reservations to register with FNMS.  You may click the link below to make your hotel reservation or call toll free within the United States 1-866-460-7456, direct phone number for those outside the U.S.A. is 1-504-342-2307.

Event Location:
Country Inn & Suites
315 Magazine Street
New Orleans, Louisiana 70130

Events Calendar

Jun 13
Ultra-mini Triathlon in Marathon!
The Beranek Family is hosting their 10th Annual Ultra-mini Triathlon in Marathon, Wisconsin to benefit FNMS! read more
Jun 29
2015 FNMS Family Conference!...
The upcoming 2015 FNMS Family Conference in New Orleans promises something new! read more

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