The Foundation for Nager and Miller Syndromes

Welcome to FNMS Online

Foundation for Nager and Miller Syndromes

The Foundation for Nager and Miller Syndromes (FNMS) is an international support group dedicated to helping those affected by these two similar and extremely rare, genetic conditions which involve moderate to severe facial and limb anomalies, but do not usually affect intellect.

These syndromes often affect one's ability to see, hear, breath, eat, walk, talk and write. FNMS serves as an information clearing house to help educate families and professionals about Nager and Miller syndromes. FNMS' extensive library of resources and medical reports on these rare conditions are available by request. Challenged families join the FNMS network for support, referrals and sharing of helpful experiences.

Nager And Miller Syndromes
Nager And Miller Syndromes
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Nager And Miller Syndromes Nager And Miller Syndromes

Genetic Research

Miller Syndrome Gene Discovered!

Nager & Miller Syndrome Research Projects

The Foundation for Nager & Miller Syndromes is proud to announce that reasearchers at the University of Washington and Seattle Children's Hospital Research Center have discovered the gene that causes Miller Syndrome! This study at Seattle Children's Hospital involves the use of a newer whole gene sequencing...

Read more »

2013 FNMS Family Conference in Seattle!

FNMS is pleased to announce that the 2013 FNMS Family Conference will be held at the Seattle Mariott Waterfront Hotel.  The conference will be held June 27- July 1, 2013. There are many more details yet to be determined this notice will be updated as the details become available. Click the link below to make your hotel reservation.

Event Location:
Seattle Marriott Waterfront
2100 Alaskan Way
Seattle, Washington 98121

Events Calendar


May 05
Piano Concert to benefit FNMS
Jose Luis Gonzalez and David Gonzalez of Guadalajara, Jalisco Mexico gave a concert on June 23, 2010 at Westmoreland Country Club in Wilmette, IL. read more
Jun 29
2010 FNMS Family Conference!...
The 2010 FNMS Family Conference in Chicago, Illinois, was a huge success! The 2012 FNMS Conference will be held in Seattle, Washington! read more

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