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Welcome to FNMS OnlineFoundation for Nager and Miller SyndromesThe Foundation for Nager and Miller Syndromes (FNMS) is an international support group dedicated to helping those affected by these two similar and extremely rare, genetic conditions which involve moderate to severe facial and limb anomalies, but do not usually affect intellect. These syndromes often affect one's ability to see, hear, breath, eat, walk, talk and write. FNMS serves as an information clearing house to help educate families and professionals about Nager and Miller syndromes. FNMS' extensive library of resources and medical reports on these rare conditions are available by request. Challenged families join the FNMS network for support, referrals and sharing of helpful experiences. |
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Genetic ResearchMiller Syndrome Gene Discovered!Nager & Miller Syndrome Research ProjectsThe Foundation for Nager & Miller Syndromes is proud to announce that reasearchers at the University of Washington and Seattle Children's Hospital Research Center have discovered the gene that causes Miller Syndrome! This study at Seattle Children's Hospital involves the use of a newer whole gene sequencing... |
2013 FNMS Family Conference in Seattle!FNMS is pleased to announce that the 2013 FNMS Family Conference will be held at the Seattle Mariott Waterfront Hotel. The conference will be held June 27- July 1, 2013. There are many more details yet to be determined this notice will be updated as the details become available. Click the link below to make your hotel reservation.
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