|
 |
|
Welcome to FNMS Online
Foundation for Nager and Miller SyndromesThe Foundation for Nager and Miller Syndromes (FNMS) is an international support group dedicated to helping those affected by these two similar and extremely rare, genetic conditions which involve moderate to severe facial and limb anomalies, but do not usually affect intellect. These syndromes often affect one's ability to see, hear, breath, eat, walk, talk and write. FNMS serves as an information clearing house to help educate families and professionals about Nager and Miller syndromes. FNMS' extensive library of resources and medical reports on these rare conditions are available by request. Challenged families join the FNMS network for support, referrals and sharing of helpful experiences. |
|
Genetic ResearchMiller Syndrome Gene Discovered!Nager & Miller Syndrome Research ProjectsThe Foundation for Nager & Miller Syndromes is proud to announce that reasearchers at the University of Washington and Seattle Children's Hospital Research Center have discovered the gene that causes Miller Syndrome! This study at Seattle Children's Hospital involves the use of a newer whole gene sequencing... |
In Loving MemoryOur dear friend and long time member Lalo Lapham passed away, June 16, 2010. Our hearts are heavy as Lalo was a special soul and much beloved. Lalo and his family have been members and supporters of FNMS since 1991. Our deepest sympathies and prayers are offered to the Lapham Alvizo Alvarez Family at this trying time. |
|
||
|
||||
|
|
||||
|
||||||||||
