The Foundation for Nager and Miller Syndromes

Welcome to FNMS Online

Foundation for Nager and Miller Syndromes Hearts are Broken

It is with acute sadness and unbearably heavy hearts that we announce the tragic and untimely passing of our Dear Founder, Margaret Hogan.  

Many of you have known and loved Margaret for a very long time, though some may have only known her more briefly and still others may have never had the opportunity to meet her in person at all.  Regardless of the length of time of our acquaintance with Margaret, she touched our lives in profound and lasting ways.  Each and every one of us has benefited in some way from Margaret's work, friendship, love & kindness.  Our world is a much better place because Margaret was there to blaze a new trail.  To state that she will be missed, seems inadequate at best.  There are truly no words that can express the depth and breadth of the sorrow that is felt.

"Do not go where the path may lead, go instead where there is no path and leave a trail." - Ralph Waldo Emerson

Nager And Miller Syndromes
Nager And Miller Syndromes
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Nager And Miller Syndromes Nager And Miller Syndromes

Genetic Research

Miller Syndrome Gene Discovered!

Nager & Miller Syndrome Research Projects

The Foundation for Nager & Miller Syndromes is proud to announce that reasearchers at the University of Washington and Seattle Children's Hospital Research Center have discovered the gene that causes Miller Syndrome! This study at Seattle Children's Hospital involves the use of a newer whole gene sequencing...

Read more »

2015 FNMS Family Conference

FNMS is pleased to announce that the 2015 FNMS Family Conference will be held at the Country Inn & Suites - French Quarter in New Orleans, Louisiana, USA.  Conference dates are June 25-28, 2015. Speakers and activities are still being finalized, more details will be posted as they become available.  Please Email DeDe Van Quill at once you have made your room reservations to register with FNMS.  You may click the link below to make your hotel reservation or call toll free within the United States 1-866-460-7456, direct phone number for those outside the U.S.A. is 1-504-342-2307.

Event Location:
Country Inn & Suites
315 Magazine Street
New Orleans, Louisiana 70130

Events Calendar

Jun 13
Ultra-mini Triathlon in Marathon!
The Beranek Family is hosting their 10th Annual Ultra-mini Triathlon in Marathon, Wisconsin to benefit FNMS! read more
Jun 29
2015 FNMS Family Conference!...
The upcoming 2015 FNMS Family Conference in New Orleans promises something new! read more

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