The Foundation for Nager and Miller Syndromes

The Syndromes

Individuals with Nager Syndrome and Miller Syndrome usually have normal intelligences, achieve academic success and are living productive lives.

Multiple surgeries are required to improve overall functional capabilities. Most common are tracheostomies which facilitate a safe airway. The small jaw would otherwise compromise this.

Unsuccessful attempts at feeding often result in the need for gastronomy tube, which is surgically implanted into the stomach to assure proper nutrition is received. Stomach reflux can also occur.

A Craniofacial Team along with an orthopedic surgeon should be consulted with when planning and prioritizing a child's medical needs. Obtaining second opinions is recommended. Hearing levels should be assessed early. If there is a temporary or long-term hearing loss, ventilation tubes or a hearing aid may be recommended.

Early intervention with physical, occupational, and speech therapies will maximize one's capabilities.

On a personal level, encouraging social interaction, independence, and nurturing positive self-esteem are necessary in preparing these individuals for their future.

Other syndromes that share facial characteristics with Nager and Miller syndromes are:

  • Genee-Wiedemann
  • Pierre-Robin
  • Treacher-Collins
  • Franschetti-Klein


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