People interested in submitting blood samples for Nager and Miller Syndromes mapping research should contact:

Dr. Ethylin Wang Jabs
phone: 410 955-4160 or
e-mail: ewjabs@jhmi.edu

For informations on Genetic Research for Nager And Miller Syndromes Mapping the genes for Miller Syndrome, and Nager Syndrome and other Acrofacial Dysostoses:

Eric A. Wulfsberg, MD
Assistant Professor of Pediatrics
University of Maryland Division of Human Genetics University of Maryland School of Medicine
22 S. Greene Street, A661
Baltimore, Maryland 20201-1595
Phone: (410) 328-3335
Fax : (410) 328-3379
e-mail: ewulfsberg@peds.umaryland.edu

National Library of Medicine http://www.nlm.nih.gov

Familyvillage http://www.familyvillage.wisc.edu/lib_nms.htm

NORD The National Organization for Rare Disorders,Inc.

Faces http://www.faces-cranio.org

American Cleft Palate-Craniofacial Association (ACPA) http://www.cleftline.org

Alliance of Genetic Support Groups http://www.geneticalliance.org

National Parent Network on Disabilities http://www.npnd.org

National Council on Disability http://www.ncd.gov

Individuals with Disabilities Education Act http://www.ed.gov/offices/OSERS/IDEA

The National Patient Travel Center http://www.patienttravel.org/
(If a patient must travel long-distance for specialized medical evaluation, diagnosis or treatment)

Let's Face It http://www.faceit.org

About Face http://www.aboutfaceinternational.org

Children's Craniofacial Association http://www.ccakids.com

National Information Center on Children and Youth with Disabilities, http://www.nichcy.org

http://activeteen.disabilitycentral.com
Funded by the U.S Department of education, @ctive Teen is an educational, social and informative resource for teens with disabilities, their families, their friends and their able - bodied peers. The site is managed by teenagers with disabilities from across the U.S.

Social Security Administration Benefits For Children With Disabilities
Internet Website: http://www.ssa.gov
Toll-Free Number
1-800-772-1213
TTY Number
1-800-325-0778

http://heartfeltpress.net
There you find information about our 4 memory books for families with children with special needs. The books cover the first year, the toddler years and the school years. They are designed to highlight the unique development of children with challenges, and to capture each precious milestone in their lives.

Smile Train - For free surgeries for children around the world: http://www.smiletrain.org

State Human Services Administrators - for info re: financial assistance by state: http://www.acf.hhs.gov/programs/ofa/hs_dir2.htm

http://www.aboutfaceusa.org

http://www.cleftadvocate.org

This site offers special health care products that can help make life a little easier.
http://www.arthritissupplies.com